Posts Tagged ‘bone marrow’

Saved by a Match

Comments Off Written on January 29th, 2014 by
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Akiim and family

Saved by a Match

In the autumn of 2003 I noticed a shortness of breath after climbing a flight of stairs. Then came the night sweats and periodic blurry vision. My throat started to swell; my lymph nodes got tender and big.

I wound up spending that Thanksgiving in bed with the worst stomachache of my life. My wife called my mother, who said, “Akiim, if you’re not sure about your relationship with Jesus then you need to go to the hospital.”

All I could say was, “OK, I’ll go.”

 

The Shock

A few days later I sat in the ER awaiting the bad news. What’s the worst it could be? Then a young female doctor told me there was a 95% chance I had leukemia.

I was in shock. The only time I’d ever heard of leukemia before was in junior high. The lady down the street had suddenly died of it. She was 33. I’m 32. I thought, “I’m gonna die,” and the tears started streaming.

Then the doctor said something I never thought I’d hear from a physician. She asked, “Are you Christians? Would you like me to pray?” I said, “Yes.” I thought doctors were all atheists, but here she was leading us in prayer in the ER in front of everyone.

I was so terrified I couldn’t cry right, just tears. I worried about my wife and kids. What would happen to them if I died? My wife would be a single mother. My kids would never know their father. I prayed that God would take care of my family when I was gone.

 

The Miracles

Cancer treatment is what they say it is—pain and suffering: A lot of both. But I found that with God on my side I could stand strong. I spent Christmas and New Years in a hospital bed.

That’s when the news got worse.

Although the oncologist predicted I had an 80% chance of going into remission after chemo, it only killed half of the leukemia cells. My prognosis dropped and my best chance of survival was having a bone marrow transplant.

My doctor referred me to a bone marrow specialist. He thought that based on my age and julietta casino online current health I had a 40% chance of survival, provided they could find a donor. (I later found out my chances were more like 10-12%.) I have one sibling, a sister, and there was only a 25% chance of her being a match. If she wasn’t, I had a 40% chance of finding a donor in the National Donors registry because I’m black. Whites have a 95% chance of finding a match.

I received two more rounds of chemo. Two weeks into the third treatment the Lord answered our prayers again. My sister turned out to be a perfect match. I underwent more high-dose chemo to kill all my bone marrow and then I received the transplant on Good Friday of 2004. Following a successful transplant I was sent home three weeks later.

Akiim and family

I still have issues related to the transplant and it is not easy from day to day. But I am here and have the opportunity to raise my kids.

I also have a new mission that God has made clear to me: People and organizations from across the nation have contacted me regarding adding more people to the marrow registry. I’ve been asked by the National Marrow Donor Program to be involved with their HBCU (Historically Black Colleges and Universities) campaign to save African American lives. I’m a board member of MoreMarrowDonors.org (http://moremarrowdonors.org) and I maintain a site called BlackBoneMarrow.com (http://blackbonemarrow.com) to expand the campaign to save more lives.

Cancer patients are more likely to find donor matches from their own ethnic background. African Americans have more genetic diversity than any other race. However, the number of black donors on the national registry is still low. Registration is free, easy and painless—just a cheek swab (http://bethematch.org).

Learn more about how YOU COULD SAVE A LIFE!

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Government set to ration life-saving donations

Comments Off Written on March 26th, 2013 by
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Washington, D.C. – A year ago MoreMarrowDonors.org was successful in challenging the National Organ Transplant Act and paving the way for research into how incentives can dramatically decrease the number of Americans that suffer and die while waiting for a marrow transplant. As we continue to work with researchers to craft a study, other proponents of the status quo have lobbied the Department of Health and Human Services to re-regulate bone marrow transplants and effectively overturn the court’s decision. The Department of HHS is accepting public comment through Dec. 2 and you can give your opinion HERE. Our hope is that the government will not adopt the proposed rule. You can read more about this recent action and the Wall Street Journal’s opinion HERE.

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Huffington Post Weighs In

Comments Off Written on March 28th, 2012 by
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Recently, the Huffington Post published an article regarding the December 1st 2011 ruling in our favor by a three-judge panel of the Ninth Circuit Court of Appeals. The article discusses the common sense reasoning behind such a decision that will save lives and later asks the question “…shouldn’t the Justice Department simply stay out of it?” Read the article HERE

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NBC's Rock Center to Feature Legal Battle

Comments Off Written on March 13th, 2012 by
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New York – NBC’s “Rock Center with Brian Williams” will feature the pathbreaking case of Flynn v. Holder, in which MoreMarrowDonors.org joined with others, including lead plaintiff Doreen Flynn, to challenge the National Organ Transplant Act. The show will air nationally on Thursday, June 14th at 10pm (EST) on NBC. Read moreHERE.

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Lawsuit Featured in L.A. Times

Comments Off Written on March 24th, 2011 by
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Los Angeles – Last week MoreMarrowDonors.org joined other plaintiffs in pressing forward with legal action to create the first of its kind program designed to grow the supply of bone marrow donors through the vehicle of compensation.  We are happy to have received much media attention (which generated significant interest in among the public) including this article in the L.A. Times. Read more HERE and be sure to click the links below to follow MoreMarrowDonors.org on Facebook and Twitter.

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